Our son Matthew has always been an easy-going happy kid, a great sense of humor, affectionate, loves music, art, swimming especially at t he beach. He has a great smile. Matt was diagnosed with Autism at the age of 18 months.
Matthew's greatest challenge is communication, expressive and receptive, so we were not prepared for his self-injurious behavior when was 15 years old. We are sharing his story, our story, to bring attention to the fact that there are young adults with Autism who are so frustrated they resort to violence towards themselves and sometimes others. They have so much to say but cannot express it.
We started to realize how little help there is for a kid like Matt. There is none.
We have learned a lot over the last 8 years about the system, the serious lack of services in Canada. We all panic when our children are sick but the reality beyond 'sick' is terrifying.
We have found a home for Matthew, in Kingston while we live in Kemptville. So there is a lot travelling to and from. He is doing well, enjoys playing his drums, listening to music, yachting and whatever activities become available.
We want more for Matt and young adults like him than being medicated and left in a hospital or an over crowded group home, just existing, we want them to live their best lives and we want to be part of that life.
July 14th is our father, Jacques St Jean's birthday and although he is not here in person, we know he's definitely here in spirit. He had a love for the game of golf but his greatest love was for his grandchildren. Matthew his second grandchild was diagnosed with Autism at the early age of 18 months.
An old generation grandfather without formal training, he followed his heart and figured out how to connect with Matthew. They were great together and had a bond that was awesome to see.
If our dad was here today he would want to personally thank each of you for your support of this cause that directly affects our family.
Some of you might remember Michael from our first year tournament. Michael had hit a bump in the road and at that time had limited support and after 3 years in the Ottawa Hospital waiting, he was finally moved to a home. Being in the hospital for so long was very traumatic for Michael for he had no contact, no activities, he stopped talking, stopped eating and was very thin and unresponsive, he was in diapers.
Michael loved playing basketball, bike riding and helping cook dinner for his sister, none of which he was able to do while in the hospital.
Michael is now adjusting to his new home environment after almost 8 years, he is certainly healthier, and he seems happier with the occasional outings and visits. We have helped Michael with some basic needs over the years to make his life better thanks to the funds we raise at our tournaments.
Michael's sister is his substitute decision maker. She has now been able to continue her studies since he in a home now. She said that Michael has taught her so much about life and is helping him on his journey because 'he would have done the same thing for her'.
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